Showing posts from July, 2019

There are some good people in the medical field

So some of you may know in February, I was in a car accident when we were driving home from cub scouts. We had a green arrow, we turned and the other driver slammed into our car right where I was sitting. Left me with a torn labrum in my right shoulder. I had to let it sit for months because I had no health insurance.The other driver did not have any medical coverage under his car insurance so I just had an MRI and xray. I did have medicaid. The primary care doctor told me my injury was due to my weight.  I only knew what was wrong, I just didnt have any way to treat it.  This is just a background.

Fast forward to last week, I had insurance again. Yay! Handed them the MRI report and disc. I have chronic tendonitis. He told me it was in the bicep tendon and the rotator cuff.  He said I needed a cortisone injection. This will help isolate the pain.

The injection was today. The doctor looked at my chart. "You are autistic, so that means sensory issues. We will use two numbing agen…

Definitions and Abreviations

After popular demand, here are common abbreviations and definitions I will add more :

504- A plan of accommodations for a child that does not qualify for an IEP .

ABA- Applied Behavior Analysis. This is the toxic dog training that parents are seeking so their child appears not autistic for the convenience of the parent. It is very toxic for the autistic. Causes PTSD

Ableism- the act of being discriminatory against anyone with a disability

ADHD- Attention Deficit Disorder

ASD- Autism Spectrum disorder. This is the medical definition. Autistics never use this acronym. This is just so you are aware

ASC- Autism Spectrum condition. How most autistics refer to their condition

Allistic- anyone who is not autistic

AT- art therapy

BCBA- ABA therapist ie child abuser

CBT- Cognative behavior therapy. A type of psychotherapy in which negative patterns of thought about the self and the world are challenged in order to alter unwanted behavior patterns or treat mood disorders such as depress…

Autistic history: Home Depot

Welcome to another blog on why they made my boycott list. Home Depot and Autism Speaks are closely intertwined.

According to Autism Speaks they donated over $950,000 dollars but it has been more.

They sell a blue light bulb for the Light it Up Blue campaign yearly. Autistics every year try to educate the company but they do not want to hear anything of it. They call us haters, silence and gas light us.

Bernie Marcus, the co-founder of Home Depot said "If you have an autistic kid, you are going to go broke. It does not matter if you are middle class or upper middle class."

He is the founder of the Marcus Autism Center. They offer ABA services (dog training), feeding therapy (ABA based), preschool and Autism research (finding a cure). He is not someone autistics want speaking for us. His goal is to change us.

Bernie Marcus funded the start up of Autism Speaks.The sum of the start up fund was $25 million.  Without him this hate organization would have never came to be.

He is a…

Being Autistic and having PCOS

I was diagnosed with Polycystic Ovarian Syndrome (PCOS) in 2005. This was when I was having a hard time getting pregnant. PCOS is a hormonal disorder common among women of reproductive age. Women with PCOS may have infrequent or prolonged menstrual periods or excess male hormone (androgen) levels. The ovaries may develop numerous small collections of fluid (follicles) and fail to regularly release eggs.
The exact cause of PCOS is unknown. Early diagnosis and treatment along with weight loss may reduce the risk of long-term complications such as type 2 diabetes and heart disease.

After diagnosed, I did not know anyone else with this disorder.  As far as I was concerned, I did not ovulate without the help of ovulation inducers. All three of my biological children are clomid babies. We often joke that it takes three people to have children in our case. My husband, myself and the doctor.

We are going to fast forward when my children are school aged. I was connected with the autistic…

Why My Dealings with Autism Speaks is Personal

Most autistics downright hate Autism Speaks. Most that I have talked to have not have personal dealings with them like I have. I have been asked multiple times to tell my story, so here it is.

My first autie diagnosis was when my nine year old was three. I brought him to the neurologist I was told about by many people. He was very good with him. He suggested ABA but did not push and he respected my position on it. I appreciated that. At this point I started to suspect I might be autistic too. He was too similar to me and I did not believe it was a coincidence.

He gave me the number to Autism Speaks and told me to give them a call. It made perfect sense. Everyone has heard of them and they are supposed to be an advocacy agency.

I called them and they told me that our local chapter was going to be at the local disability fair. I was excited because I would get some information. I went to the fair. I got information about different services that my son would be eligible for. Nothing for…

Autistic History: Autism Speaks

The first in this blog series is Autism Speaks. This is the most popular and well known charity but yet the most toxic. I do not agree with anything written in this post. I am stating the history and why they made my boycott list.

 History It was founded by Bob Wright in Febuary of 2005. He was the Vice Chairman of General Electric. He formed this organization soon after his grandson was diagnosed.

In 2005, Bernie Marcus, the Co-Founder of Home Depot, donated $25 Million to launch Autism Speaks. He has been on the board ever since.

In January of 2008 a child clinical psychologist named Geraldine Dawson PhD became Autism Speak's chief science officer.

In April 2010, it named Yoko Ono its first "global autism ambassador."

Since forming the organization, they have merged with three other autism organizations. They did this in order to raise millions of dollars in autism research.

Starting in 2009, they used Wubzy from the televison show "Wow! Wow! Wubzy!"

On May…

Ableism happens every day, even in this enlightened Era

Today was like any other day. I saw pets that needed me, and in between I normally go to a thrift store. One of my stops was near my favorite one, so I decided to stop in.

Found an original Little Foot plushie from the Land Before Time movie. That was amazing. I found some sealed flea medicine for my service dog and an angry bird plushie for my boys.

I went to wait on line. I started to think about the different things I had to do this weekend. It is booked solid. As I was planning in my head what I was going to do then thinking about the pizza. Then I was thinking about how I was going to organize the pantry. Racing thoughts is part of having a shiny brain.

While I was lost in my own thoughts, I then heard the cashier yell "I don't have all day, I shouldn't need to give you your own special invitation!" Of course I was annoyed and I walked up to the register. I explained to her that I am autistic and I have ADHD (shiny is not widely used term). She laughed and rang …

Non Verbal Communication can Facilicate Speech

One thing that gets said a lot when it comes to autistic children, non verbal communication hinders speech. In my experience, it facilitates speech.

When it comes to autistic children, the milestone timeline is different. It is different for every child and should not be compared to a typical child.

I have two examples. One from myself  and one from my son.

I was born with out the bones in my ears that vibrate, and my speech was delayed. Even though my parents refused to us American Sign Language, my therapists, teachers and friends did. ASL was my first language.

 My speech therapist used signs to teach me to lip read. After I mastered lip reading, which is not easy, I started to make sounds. When that happened, she had me put my hand on my throat so I knew I was making a sound. After that happened, she would say a word, I would feel her throat. Then I would make the same sound. If the vibration pattern matched, then I knew I was saying the word right. That is how my verbal communic…

Autistic, veterinary proffessional = complicated feelings about Temple Grandin

One question I get asked a lot is my thoughts on Temple Grandin. I am an Autistic and am in the veterinary field. My thoughts on her are complicated. Let me explain.

When I first thought I may be autistic, but not sure, I did some research. I found Temple Grandin. She is autistic and against all odds earned her phD in Animal Science. She was one of the driving forces behind me going to school to be a veterinary technician and then continue to be a veterinary technologist.

 I thought that if she could do it, so can I.

I then got accepted into school, then got involved in the autistic community. I learned more about Temple. She opened doors for autistics to follow. This is a good thing but also the methods she advocates for are not the best. She helped dispel some sigma against autistic people. She was the first person to be publicly autistic. Not only was she publicly autistic, she was also very successful. This made her the most famous autistic person in the world. She graduated from…

When being shiny and autistic collide

It is common knowlege by now that I am both Autistic and Shiny (ADHD). They seem like two opposite conditions. How can someone be both?

One area it does affect is routine. My autistic side loves routine. If the same things happen every day, I thrive on it. I know what to expect. Nothing will take me by surprise. Everything is predicable.

My shiny side gets bored easily. The same thing day in and day out. When I get bored my routines do change. Then I throw myself off with the change in routine. Its an ongoing cycle. When establishing a new routine, it normally takes a long time for it to get established. This causes confusion, uneasy feeling and some anxiety. After the time passes where the routine finally gets established, my brain sometimes get bored again.

Another area is executive dysfunction. What is executive dysfunction? It is difficulty planning, organizing, flexibility and self motoring. When I do need to do something, I lack the ability to do it. Dates and time become a jum…

Functioning Labels and How they Harm

How many of you have heard high, low or moderate functioning? What does it even mean?
The functioning labels are often used to refer to the "severity" of someone being autistic.

When you call someone "low functioning," you usually think of someone who is unable to communicate, participate socially, take care of activities of daily living independently, etc.

When you hear of someone call someone "moderate functioning," they may have some communication, may be independent with some activities of daily living but not all, among other things.

When you hear someone is high functioning, you think of someone who is unnoticably autistic. They communicate well but they are socially awkward. Some may not believe they are autistic.

Why do we have functioning labels? It is a way of describing how disabled someone is by a certain condition. Humans have a need to put labels on everything.

What do functioning labels actually describe? How other people experience us be…

Employment and the Neurodivergent

Employment. It seems like a simple thing for most but for the neurodivergent, it can be a challenge. This requires executive functioning. Executive functioning allows people to plan, organize and complete tasks.

For the typical it seems simple. You have a to do list, you get it done and go on to the next one. For people like myself, its no easy task. You need help.

My first job was great. I was a cashier at a grocery store. The people there watched me and helped me with my executive functioning. I was a teenager and I felt safe there. Met the best friends of my life. I thought all employment was that good. I worked there throughout high school. Unfortunately, I was really wrong.

After I moved away from home, I worked in different stores. My executive functioning dysfunction, took over. I never lasted at a job for more than a year. I was always fired for no good reason. It was horrible for my self esteem. I thought there was something really wrong with me. I usually tried to work in s…

Brass Check TV (SMEAR PIECE): NBC Didn't Like the Way This Mother Healed Her Child So They Worked With Trolls to Attack Her

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A disturbing trend to “cure” autism using “bleach-like solution” is showing up across major social media platforms

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Why saying "no meltdowns" is wrong

So today I went to the school to donate my son's weighted vest that he had outgrown. Not all insurances cover them. I would be blessed if someone gave one to us. So when I got there, I was waiting for the appropriate staff member to give it to.

There as a boy around 12 years old being dropped off for an egg drop competition. He was excited. He showed me the contraption he made to make sure his egg does not break. I did this event with my scouts and it can be a lot of fun.

His mom as with him. As they were ready to receive him, she tells him "No meltdowns."

Let that sink in. She told her autistic son not to have a meltdown.

I am going to assume that his mother is typical and has no idea what a meltdown is like. Let me enlighten you.

I will bring you back to the first meltdown I can remember. We do not remember them all. They can be very traumatic.  I was about eight. My abusive mother was holding on to me when I did not want to be touched. We were at the train station, le…