Saturday, July 27, 2019

Being Autistic and having PCOS

I was diagnosed with Polycystic Ovarian Syndrome (PCOS) in 2005. This was when I was having a hard time getting pregnant. PCOS is a hormonal disorder common among women of reproductive age. Women with PCOS may have infrequent or prolonged menstrual periods or excess male hormone (androgen) levels. The ovaries may develop numerous small collections of fluid (follicles) and fail to regularly release eggs.
The exact cause of PCOS is unknown. Early diagnosis and treatment along with weight loss may reduce the risk of long-term complications such as type 2 diabetes and heart disease.

After diagnosed, I did not know anyone else with this disorder.  As far as I was concerned, I did not ovulate without the help of ovulation inducers. All three of my biological children are clomid babies. We often joke that it takes three people to have children in our case. My husband, myself and the doctor.

We are going to fast forward when my children are school aged. I was connected with the autistic community. Almost all the autistic women I talked to also have PCOS. So many other have had similar experience to me. They could have been talking about me. One had a more intense fertility journey than mine and mine was painful enough. Its great how we can all get together and support each other.

 There are other disorders that are very common with autistic people. It is never talked about in healthcare how these disorders are very common in autistic people. Seizure disorders, PCOS, EDS, and some others. This would be a very interesting thing to study, I think. This way these disorders can be diagnosed earlier.

For now, I have insurance and I am going to the doctor to have my hormone levels checked. I am taking a poll to see how high my testosterone is. That causes the majority of the issues and to see what can be done about it. I will update with what the treatment plan is. I have a feeling it will be metformin again. I did not do well with it last time.

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